Planning And Developing Population-Based Cancer Registration In Low And Middle-Income Settings
- International Agency for Research on Cancer, F. Bray
This guidance document consists of six chapters that provide technical advice to planners and health specialists in low and middle-income countries wishing to implement and develop Population-based Cancer Registration (PBCR) as information system that inform cancer control policy.
Chapter 1 - places the need for cancer registration in the context of the rapidly increasing burden from the disease seen worldwide.
Chapter 2 - describes the characteristics of the different types of cancer registry and the unique functions of PBCRs and their present status worldwide.
Chapters 3 and 4 - outline the critical steps in planning and developing a PBCR in lower-resource settings, including discussion of the key sources of information required and the minimal standard set of data items that the PBCR should collect. Aspects in the set-up that will help ensure the sustainability of the registry are emphasized, including comments on infrastructure and resource requirements as well as the commitment of stakeholders.
Chapter 5 - describes the main techniques to evaluate and further enhance the data quality at the PBCR.
Chapter 6 - provides some advice on reporting the results to the community at large in support of cancer control and thus promoting the increasing utility of the registry.
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